OVERVIEW

This web page marfanworld.org presently has a traffic classification of zero (the lower the superior). We have sifted zero pages inside the website marfanworld.org and found one hundred and nineteen websites referring to marfanworld.org. We were able to unearth two contacts and locations for marfanworld.org to help you contact them. This web page marfanworld.org has been online for one thousand one hundred and eighty weeks, fifteen days, six hours, and five minutes.
Links to this site
119
Contacts
2
Locations
2
Online Since
Nov 2001

MARFANWORLD.ORG RANKINGS

This web page marfanworld.org is seeing variant levels of traffic within the past the year.
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MARFANWORLD.ORG HISTORY

This web page marfanworld.org was first recorded on November 20, 2001. It is now one thousand one hundred and eighty weeks, fifteen days, six hours, and five minutes young.
REGISTERED
November
2001

WEBPAGE LENGTH OF LIFE

22
YEARS
7
MONTHS
15
DAYS

LINKS TO WEB PAGE

Marfan Syndrome- Genetics Project

Saturday, May 1, 2010. What is a Genetic Counselor-Qualifications, Education, Job details. A genetic counselor is a healthcare professional who is trained to help families understand genetic disorders that run in the family, and educate and provide support for them. Genetic counselors work with doctors and other families to help the family assess risks of the disease and counsel their options if applicable. How does a person inherit this genetic disorder? One per 5,000 .

Willkommen bei der Marfan Initiative Österreich - Marfan Initiative Österreich

Was ist das Marfan Syndrom? Rückblick Plaudertreffen in Salzburg. Im Gasthaus Brückenwirt trafen sich am 4. November 2017 an die 15 Marfanis bzw. Angehörige aus Salzburg, Tirol und Wien. Neben regem Informationsaustausch gab es viele neue Ideen für Aktivitäten im näc. Marfan Europe Network Meeting 2017. Hier finden Sie alle Neuigkeiten der Marfan-Initiative Österreich. Ab 1630 Uhr bis 19.

Know the signs. Fight for victory. The Marfan Foundation

What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Camps are in April and July 2018. Our research and progress depends on you. Click here to donate today. Click here for info and to learn about other symposiums in the coming year. LOOKING FOR A DOCTOR? The Marfan Foundation An.

Forside - Marfan

Marfanforeningen er en landsomfattende forening for mennesker med Marfan syndrom, Loeys-Dietz eller lignende tilstander, deres pårørende og andre interesserte. Hva er Marfan syndrom? Lurer du på hvordan det er å leve med Marfan? Vi anbefaler at du ser vår nye informasjonsfilm om temaet. Den varer 25 minutter og vil gi deg et lite innblikk i tre ulike menneskers hverdag. Til venstre her ligger en 90 sekunders smakebit. Se filmen i sin helhet her. En stor takk til alle.

Know the signs. Fight for victory. The Marfan Foundation

What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Camps are in April and July 2018. Our research and progress depends on you. Click here to donate today. Click here for info and to learn about other symposiums in the coming year. LOOKING FOR A DOCTOR? The Marfan Foundation An.

WHAT DOES MARFANWORLD.ORG LOOK LIKE?

Desktop Screenshot of marfanworld.org Mobile Screenshot of marfanworld.org Tablet Screenshot of marfanworld.org

CONTACTS

National Marfan Foundation

National Marfan Foundation

22 Manhassett Avenue

Port Washington, NY, 11050

US

Network Solutions, LLC.

Network Solutions, LLC.

13200 Woodland Park Drive

Herndon, VA, 20171-3025

US

MARFANWORLD.ORG HOST

Our web crawlers diagnosed that a lone root page on marfanworld.org took two hundred and sixty milliseconds to load. We could not find a SSL certificate, so in conclusion I consider marfanworld.org not secure.
Load time
0.26 seconds
SSL
NOT SECURE
Internet Address
198.185.159.145

NAME SERVERS

dns3.earthlink.net
dns2.earthlink.net

TITLE

Home MarfanWorld

DESCRIPTION

Marfan World

CONTENT

This web page states the following, "Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California." Our analyzers saw that the web page stated " The mission of Marfan World is to." The Website also said " Share current, accurate information about the Marfan syndrome and related disorders worldwide. Facilitate international communication among medical professionals who serve the Marfan and related disorders community." The website's header had IFMSO as the most important optimized keyword. It is followed by International Federation of Marfan Syndrome Organizations, marfan, and Connective Tissue Disease which isn't as highly ranked as IFMSO. The next words marfanworld.org uses is Genetic. Fibrillin was included and will not be seen by web crawlers.

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